A Study of Video Narratives of Caregivers of Children with Cancer Through the Lens of Media Geography
Keywords:
health communication, caregivers of children with cancer, Shakeology platform
Abstract
The purpose of this study was to analyze the narrative content of anti-cancer videos posted by caregivers of children with cancer on the Jieyin platform. Through coding and analysis of 192 anti-cancer videos posted by 10 caregivers, it was found that these videos focused on four main areas: documenting the child's cancer journey, expressing the emotional stress associated with caregiving, raising public awareness of childhood cancer, and raising money for charity. The study suggests that the Shakeology platform is not only a tool for caregivers to document and share their sick child's treatment process, but also an important avenue for emotional catharsis, social support, and raising financial resources. These anti-cancer video contents have contributed positively to raising public awareness and understanding of childhood cancer, while helping families of children with cancer to better cope with life's challenges.
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Ni, X., Li, Z., Li, X., Zhang, X., Bai, G., Liu, Y., Zheng, R., Zhang, Y., Xu, X., Liu, Y., et al. (2022). Socioeconomic inequalities in cancer incidence and access to health services among children and adolescents in China: A cross-sectional study. The Lancet, 400(10357), 1020-1032.
Best, M., Streisand, R., Catania, L., & Kazak, A. E. (2001). Parental distress during pediatric leukemia and posttraumatic stress symptoms (PTSS) after treatment ends. Journal of Pediatric Psychology, 26, 299-307. https://doi.org/10.1093/jpepsy/26.5.299
Boman, K., Lindahl, A., & Björk, O. (2003). Disease-related distress in parents of children with cancer at various stages after the time of diagnosis. Acta Oncologica, 42, 137-146.
Boman, K. D., Williams, S. M., McGee, R., & Skegg, D. C. G. (2000). Impact of childhood cancer on the mental health of parents. Medical and Pediatric Oncology, 35, 475-483. https://doi.org/10.1002/1096-911X(20001101)35:5<475::AID-MPO6>3.0.CO;2-U
Salvador, Á., Crespo, C., Martins, A. R., Santos, S., & Canavarro, M. C. (2015). Parents' perceptions about their child's illness in pediatric cancer: Links with caregiving burden and quality of life. Journal of Child and Family Studies, 24, 1129-1140. https://doi.org/10.1007/s10826-014-9921-8
Vrijmoet-Wiersma, C. M., van Klink, J. M., Kolk, A. M., Koopman, H. M., Ball, L. M., & Egeler, R. M. (2008).
Trask, P. C., Paterson, A. G., Trask, C. L., Bares, C. B., Birt, J., & Maan, C. (2003). Parent and adolescent adjustment to pediatric cancer: Associations with coping, social support, and family function. Journal of Pediatric Oncology Nursing, 20(1), 36-47.
Hoekstra-Weebers, J. E., Jaspers, J. P., Kamps, W. A., & Klip, E. C. (1999). Risk factors for psychological maladjustment of parents of children with cancer. Journal of the American Academy of Child & Adolescent Psychiatry, 38(12), 1526-1535.
Hoekstra-Weebers, J. E., Wijnberg-Williams, B. J., Jaspers, J. P., Kamps, W. A., & van de Wiel, H. B. (2012). Coping and its effect on psychological distress of parents of pediatric cancer patients: A longitudinal prospective study. Psycho-Oncology, 21(8), 903-911.
Martin, S., Calabrese, S. K., Wolters, P. L., Walker, K. A., Warren, K., & Hazra, R. (2011). Family functioning and coping styles in families of children with cancer and HIV disease. Clinical Pediatrics (Phila), 51(1), 58-64.
Adams, E., Boulton, M., & Watson, E. (2009). The information needs of partners and family members of cancer patients: A systematic literature review. Patient Education and Counseling, 77, 179-186. https://doi.org/10.1016/j.pec.2009.03.027
Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., & Stern, A. (2004). Health-related virtual communities and electronic support groups: Systematic review of the effects of online peer-to-peer interactions.
Love, B., Crook, B., Thompson, C. M., Zaitchik, S., Knapp, J., LeFebvre, L., & Rechis, R. (2012). Exploring psychosocial support online: A content analysis of messages in an adolescent and young adult cancer community. CyberPsychology, Behavior, and Social Networking, 15, 555-559. https://doi.org/10.1089/cyber.2012.0138
Kerr, L. M. J., Harrison, M. B., Medves, J., Tranmer, J. E., & Fitch, M. I. (2007). Understanding the supportive care needs of parents of children with cancer: An approach to local needs assessment. Journal of Pediatric Oncology Nursing, 24, 279-293. https://doi.org/10.1177/1043454207304907
Gage, E., & Panagakis, C. (2012). The devil you know: Parents seeking support online for pediatric cancer. Sociology of Health & Illness, 34(3), 444-458.
Merowitz, J. (2002). Disappearing territories: The impact of electronic media on social behavior (X. Zhijun, Trans.). Beijing: Tsinghua University Press.
Simmel, G. (2002). Sociology: The study of forms of socialization. Beijing: Huaxia Publishing House.
Knepper, K. N., & Arrington, M. I. (2018). Parents' narratives in an online PHPV forum: Towards a typology of caregiver illness narratives. Illness, Crisis & Loss, 26(4), 316-329. https://doi.org/10.1177/1054137316667594
Xie, Z. (2020). Spring Festival Gala as memory practice: Writing, carrying, and consumption of mediated memory. International Journalism, 42(1), 154-176.
Lu, H. Y., Lin, S. F., Huang, C. H., Lee, H. H., & Ma, L. C. (2020). Talk about cancer! Exploring communication between patients and family caregivers. Communication & Society, 51(3).
Yang, X., Lu, L., Wang, S., et al. (2020). Research progress on social alienation in cancer survivors. Chinese Journal of Nursing, 55(8), 1270-1275.
Published
2024-12-18
How to Cite
Zou, W. (2024, December 18). A Study of Video Narratives of Caregivers of Children with Cancer Through the Lens of Media Geography. Humanities and Social Science Research, 8(1), p1. https://doi.org/https://doi.org/10.30560/hssr.v8n1p1
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